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I am very sorry to hear it Mustafa. Seeing things like this plague young people and their families angers me to no end. You have my most sincere hope that you can manage it and that a treatment will be developed as quickly as possible.
Keep your head up and a smile on your face.
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I'm sorry to hear that Mustafa. I'm not trying to get your hopes up, MS was not a good outcome, but before you accept the 'nothing I can do' prognosis, I recommend you read the work of George Jelinek. This guy is a professor of medicine and was diagnosed with MS about 10 years ago. After scouring the literature and working his own case, he recommends a range of alternative therapies that he believes at least help. In his case he has been symptom free for years.
"It doesn't matter how big a ranch ya' own, or how many cows ya' brand, the size of your funeral is still gonna depend on the weather." -Harry Truman.
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Oh bugger, sorry to hear that. I can only hope the progression is REALLY slow. A friend of ours has this and the progression has been very slow, she was diagnosed over 15 years ago and has led a reasonably normal life, even getting married. So with the expected progress I hope for the best.
Never underestimate the power of human stupidity
That's dreaful news, Mustafa. I'm very sorry to hear it. My ex-wife had it, back when there was no certain way to diagnose it excepting an autopsy (no MRI then). For her, and most of the people I met who were part of the support group we joined to help deal with it, the symptoms came and went. Some would be in remission for years, then a bout would strike them for a few days or weeks, and then as mysteriously clear up again. There was no hope for a cure then, and I'm glad to hear that significant progress has been made in the past 25 years.
Millions of people cope successfully with it every day, often with the help of a MS support group. I've always thought such groups were useless prior to being involved with one, but I admit that they are an extremely important part of living with MS. I encourage you to find and become a member of such an organization; no one but another living with MS can really understand it. They also are the best source of information on the latest experimental data and treatment options. As most doctors know little about it - I've seen two throw up their hands because there was nothing they could do and refuse to see my ex again - you have to become your own doctor. Support groups can help immensely.
Good luck to you, and I pray that a breakthrough will occur soon. They do all the time, you know.
"A Journey of a Thousand Rest Stops Begins with a Single Movement"
Some would be in remission for years, then a bout would strike them for a few days or weeks, and then as mysteriously clear up again.
That's the benign type, the one I'm diagnosed with because apparently, this is the first lesion since 2.5-3 years (the time of the last MRI which had the Doctors thinking it was a sever B-12 deficiency).
Roger Wright wrote:
I'm glad to hear that significant progress has been made in the past 25 years.
Well, yes and no. What medication that exists right now is sort of to cover up for the side effects of the disease and/or to try and limit the damage it causes. The way a Doctor described it to me, active lesions are a good sign. It means that my body is fighting it. The White blood cells are fighting by demyelinating my brain cells (white matter) and other cells (whose name I forget and can't be bothered to google at the moment) are fighting back by myelinating the attacked cells. Its when my body stops fighting back that it becomes scary.
Roger Wright wrote:
I encourage you to find and become a member of such an organization; no one but another living with MS can really understand it
Richard Abbott (bless him for the saint that he is!) was kind enough to search for a local one and post it here. I tried calling them today but by then they were closed for the day. I'll give them another ring tomorrow. I'll hook up with them any way I can.